I'm back. I know I know, simmer down. :) I realized that I have neglected to update you all on my transplant clinic visit I had on the 12th. Hence the reason for this post! :) So..here it goes. Ready?
I'm a fat ass. I weighed 112 lbs at weigh-in at the clinic. That is more than I have ever in my life weighed. I never thought I would make it to 110. Much less, OVER 110. And at the rate I'm going, I will probably be up to 120 by New Years. I mean, Realistically, I KNOW I'm not FAT for real..but watching myself outgrow all of my clothes is really starting to make me feel like a true fatty. (no offense to my 'big boned' readers of course) I had to get new jeans for Christmas b/c my jeans are all getting a little too tight. Plus, after I get my new lungs, I will probably gain a lot of weight from the Prednizone. But I hope not. *crosses fingers and toes* I feel like I have a Budah belly. I'll have to take a picture some time of my belly and post it. Oh well...getting fat isn't the worst thing in the world. At least I'm alive..
Moving right along, my FEV1 on my PFT's has dropped by 1%. For all of you crappy lung challenged folks, FEV1 stands for Forced Expitory Volume over 1 second. And PFT stands for Pulmonary Function Tests. Basically, at every clinic visit, I have to do Pulmonary Function tests, where I blow into this big tube connected to a big machine and it measures lung function. They ask you to take a big breath IN, then blow it out as hard and fast as you can for as LONG as you can without having to breathe again. And i mean for as LONG as you CAN. I mean they want your face turned beet red from lack of oxygen from blowing so hard and long. The FEV1 is measured during the first second as you blow out. The last clinic visit my FEV1 was 21%. This time, my FEV1 was 20%. Oh well. Shit happens.
Rolling ahead, my 6 minute walk was also a lot worse than the last time. The last 6 min walk that I had, was in July. I walked almost 1000 ft. over 6 minutes. This time at clinic, I walked only 600 and some. (can't remember exact number) That's a huge difference. But, Kristin, the PT for the transplant team told me that the first one may not have been done correctly back at home. But, assuming that it was...that's a huge drop.
So put together, all this information doesn't sound all that great. All three things being on the negative side. Well okay, the weight isnt really negative for my health. But to me it is, so shut your piehole. GOSH! *rolls eyes* But the last two seem rather negative and bad news-ish. BUT - in reality...this will only help me, transplant wise. Because, my allocation score will go up, because I did worse on the tests.
So, therefore, its not all THAT horrible to do worse. Just as long as I don't seem to be suffering any ill effects from it. Which I'm not. So that's good. :)
Now you're all caught up for now. Dinner is here. Time to add some more lard to my Budah belly!! :)