What's up my bitches?
Wow, what a week so far. I'm tireder than all hell. I've been to Chapel Hill and back 2 times this week. AND I have to go again next Friday to see the transplant team. ughhhhh.
Tuesday morning I had an appointment with the sleep specialist in Neurology at the main hospital. I don't know what I expected her to tell me, but it wasn't what I heard. This lady is crazy.
She gave me a list of rules which consist of (no specific order): Lights out at Midnight - What the hell? Am I band camp? Do I need to pull out my clarinet from 6th grade? She is trippin'!
NO naps! (unless I absolutely can't stay awake) Is she mad? That's like telling a monkey not to eat bananas - it's in my nature.
No T.v. or computer after 11 PM. OH MY GOD - She is the devil! I think she is purposely trying to ruin my life.
The last one - and definitely the worst. NO CAFFEINE...which means, *TEARS* NO PEPSI!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! She might as well rip my heart from my chest and laugh at me as she throws it down and stomps on it. That's how bad it hurts. Granted - I can drink caffeine free Pepsi and I WILL - but its just not the same.
I'll go along with her little scheme - for now. But I'll be damned if I don't drink a regular Pepsi every now and then. What is it they say? As long it's in Moderation, it's okay? :) What she doesn't know won't hurt her!
She also gave me some pills to take, hopefully they will help.
Last night Justin and I took his Mom's car back to Chapel Hill to go to support group. It was pretty interesting. The transplant surgeon (Dr. Egan) who started UNC's lung transplant program was there speaking on his research.
They are doing research on Ex-Vivo lung transplantation. Which means they would be taking lungs from non heart beating donors - meaning those who arrived at the hospital D.O.A. or die at the hospital b/c their heart stops beating and can't be resuscitated. They believe that it may actually be better than brain dead donors b/c brain death can cause damage to the lungs. But lungs after heart death, still oxygenate (unlike every other organ, b/c the other organs depend on blood pumped from the heart to the organs - but the lungs don't)
It was very interesting. Dr. Egan is brilliant. There were a couple of videos we saw that were awesome. Below is the website that explains his research.
I have a headache. I'm going to get off this badboy. Talk to you laters!
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