Sunday, February 14, 2010

Japanese food, bitches!

What's up bitches!

Hope everyone is having a glorious Valentine's Day! Chris and I went to eat Japanese in Winston Salem last night. YUM. GET IN MY BELLY! I've eaten 10000000 cheesypoofs this weekend as well. But, actually from this angle, as I stare down at my dodgeball gut, I think it may actually have shrank a bit. POSSIBLY. I'm probably wrong. I usually am.

Okay, I think I'm tired of typing already. lol  Talk to you later!!!!

Friday, February 12, 2010

Meg the Human Marshmellow Goddess of Cheesey Poofs and all that is Edible.

HI Y'all.

Today I went shopping. Trying to find something on this god awful blob of a "figure" of mine. If that's what you want to call it. Not that it wasn't horrible before this week, but now the Solumedrol and tapered prednisone doses are already wreaking havoc on my already marshmellowy goodness. This shopping trip was an horrid EPIC FAIL of a trip. I got some stuff but it still looks like utter and complete crap. My boobs are gigantic (don't even know what size anymore - haven't bought a new bra yet) and jiggly. My tummy reminds me of a big dodge ball and my face looks like it ate itself, regurgitated itself  right back up and re-ate itself again for dessert.

And of course, b/c of the prednisone taper again, my ankles are swollen from being up shopping for 3 hours and they are sore. To top it off, my back is still hurting, but the medication that the family doctor here in town gave me for the pain has been shot down by the transplant team. Can't take it. Interacts with the steroids. GREAT. So, now I will be pitied with a bit of pain meds come this week for my back. But i have to wait until Monday and call my coordinator back to get relief from this pain.

Tomorrow evening, Chris is supposed to come into town. We are going to Winston to eat dinner for Valentines. (a day early) But hey, look out the window. It's fucking snowing. Great. I hope that doesn't ruin my weekend plans. If it does, it figures. This has been a fucked week.

I'll end this little post by telling you of a wonderfully gratifying experience I had this afternoon when I got home from shopping. I sat down, kicked my feet up to rest my weary, sore and swollen cankles and proceeded to cough. Well, as this wonderful cough errupted from the depths of my shiny new lungs, I promptly pissed myself a little bit. Right through my pants. For serial, ya'lll. There was like a 2-3 inch patch of pee on the cushion of the couch. How rewarding for a day's worth of depression and self hatred. FML.

I'm going to quit having a pity party now. Like I always, say, It' could ALWAYS be worse. and at least I'm still here and breathing! Peace and chicken grease.

Thursday, February 11, 2010

Update - Rejection, no rejection, rejection? YES rejection. Poop.

Hidey Ho, My little bitches.

I kiiid, I kiiiid. You know I say bitches in the most appreciative loving way. :) I love my bitches! Shit, I'm a bitch! We're all bitches! Let's just be one big happy community of bitches and bitchiness! WOo hoo! Clasp hands and let's dance around in a circle and make a theme song for our Bitch Community. Let me know if you think of some lyrics, I'll write them down. :) lol

Anywho's....So, I went to Chapel Thrill on Monday morning to get my pft's re-tested. As Noted before in my last post, If they had gone back up they maybe would have refrained from treating me with steroids for rejection and just went with the idea that it was a false positive rejection result do to the virus I've had. Well, unfortunately (and just my luck as usual) My FEV1 had NOT gone up ,it had actually like every asshole I've had in my life , did a completely reverse asshole move and dropped dramatically. So it was only 39% on Monday. Greaaaaaaaaaaat. Fuck me.

So, instead of being slapped on my ass and sent on my merry little way, I was slapped into the chair in the infusion room at the clinic and given a painful IV. (But, I give her credit, she did get it on the first stick!!) Then I was giving my first dose of IV Solumedrol. Mmmm. Yumm. Panic/spastic/pyschotic attack city. While that was running, they contacted the home health ppl. and had them call me. After my IV was done, about 30 minutes later, my home health care package (with my 2 IV doses, flushes, and such) arrived and my brother and I promptly took the box and all the crap I'd brought with me and accumulated throughout the day at the hospital, and got the hell out of there.

Now, here it is Thurs. evening. I finished my last dose of IV  SOlumedrol yesterday and the nurse pulled the IV. YES! And today I started my rejection treatment prednisone taper. (Starting at 60 mgs a day for 3 days - holy shit) So, my tummy has been hurting today but luckily that means that the Prednisone Monster hasn't attacked me yet and I'm not shoving food down my throat at 75 mph.....YET. I'm going to try and do better this time around. I promise. *fingers crossed* Other than that I'm actually feeling a little better..feel like I have a little more energy already and ready to stop napping so much.

I'm sitting at Lori's hanging out in her bed and typing away and relaxing, while she is cleaning her house. Technically I'm supposed to be keeping Keegan (her 4 year old) company and out of her way, but he's a firecracker. He's hard to control. :) But, he's done well so far. But now I'm alone and he's in there. He couldnt stay away from mommy and daddy for too long! Rob, her man is cooking up a big dinner and it smells fuckin' awesome.

I am going out to one of my favorite Japanese restaurants on Saturday for an early Valentine's Day dinner with Chris. Can't wait! Then we are driving back into town and staying the evening at Lori's house so he won't have to drive all the way back to Lincolnton. Sounds like a good Valentine's Day! Can't remember the last time I had a good Valentine's Day. I think it might have been the last one before I got sick. Which was actually the weekend I got sick in 93. Which ironically, my ex fiance Justin was my boyfriend. ANYWAYS -

I'm going to go I think dinner is almost ready. And then Wii later. I'll Hollllllllaaaaa!

Friday, February 5, 2010

I hate Winter.

Wassup?

Okay. what the hell. So I was scheduled to go down to chapel thrill today, right. To get repeat PFT's and such. Well, thanks to the fuckin' weather, I couldn't go. So I rescheduled my pft's for Monday morning. But, I couldn't get in touch with my coordinator to ask him if that was okay, or if there was anything he wanted me to do until then, etc. Great.  So. I still haven no idea if i have rejection or not. My chest is still tight. And I'm still coughing some stuff up. Great. Just great. Now i have to wait 3 more fuckin' days. It better not snow me out on Monday. I'll be there come hell or high water!

I had a great time with the girls on Wed. night. I took a few pics but I haven't downloaded them yet. I will probably put them on facebook for the world to see. Ha.Ha. Yay Don' Juans!

I'm supposed to go to Emily's birthday party tomorrow evening, granted the weather behaves and the roads are good enough to ride to winston on. Chris is supposed to go with me. Yay.

Okay I'm going to go try and email my coordinator. Have a wonderful weekend!!! Peace and chicken grease!

Tuesday, February 2, 2010

Update: Rejection or No Rejection - that's the question!

What's up y'all!

So, Ken (tx coordinator) called me back on Monday and said that I have Adenovirus. And that it could have caused a false positive rejection result. SO - Now, I don't know if I have rejection or not. Right now, the plan is for me to go back down to Chapel Thrill on Friday. Get repeat PFT's, and if my FEV1 hasn't gone back up, then they will go ahead and treat me with steroids. So, I guess we'll see what happens. I hope my pft's will go back up. Not only b/c it could mean no rejection, but b/c i worked so hard and waited so long for my FEV1 to hit 60%! and Now it's back down to 55%...so disappointing. I want it to go back up!!! Keep your fingers crossed for me please!

Tomorrow evening, Mary Berk, Julie, Brooke, Amanda and I all going out to Don Juan's to celebrate Mary Berk's birthday. Yay, Don Juans! We haven't been in a few weeks. I'd love to have a few drinks, but I'm not sure how smart that would be right now considering I have that virus and the bronchitis. So, I'll probably refrain. Or just have a beer. Since we are having tacos tonight for dinner, I'll probably just end up eating nachos and dip. Mmmm, liquid crack. My favorite. :)

So, it snowed all afternoon Friday into the night and over night and some Saturday too. We got 8 inches! That's the most we've gotten in a long time at any one time. Bo (my brother) and our friends Nate and Susie and their family all went sledding Friday and Saturday and Sunday. I wanted tog o so bad, but I figured it was best for me to stay in since I've got the bronchitis. :-(  But, it's amazing to see all this snow on the ground!!!

I've pulled a muscle in my back and it's hurting like crazy. So i've been using the heating pad all day and I eventually broke down and took some Percocet. It's helped a lot, but now I'm itching like a bitch!

Okay that's all I've got for you right now. I'll holla at cha later!!!

P.S.  I'm taking the quote thing off my page b/c it's not working right.