Update - Rejection, no rejection, rejection? YES rejection. Poop.

Hidey Ho, My little bitches.

I kiiid, I kiiiid. You know I say bitches in the most appreciative loving way. :) I love my bitches! Shit, I'm a bitch! We're all bitches! Let's just be one big happy community of bitches and bitchiness! WOo hoo! Clasp hands and let's dance around in a circle and make a theme song for our Bitch Community. Let me know if you think of some lyrics, I'll write them down. :) lol

Anywho's....So, I went to Chapel Thrill on Monday morning to get my pft's re-tested. As Noted before in my last post, If they had gone back up they maybe would have refrained from treating me with steroids for rejection and just went with the idea that it was a false positive rejection result do to the virus I've had. Well, unfortunately (and just my luck as usual) My FEV1 had NOT gone up ,it had actually like every asshole I've had in my life , did a completely reverse asshole move and dropped dramatically. So it was only 39% on Monday. Greaaaaaaaaaaat. Fuck me.

So, instead of being slapped on my ass and sent on my merry little way, I was slapped into the chair in the infusion room at the clinic and given a painful IV. (But, I give her credit, she did get it on the first stick!!) Then I was giving my first dose of IV Solumedrol. Mmmm. Yumm. Panic/spastic/pyschotic attack city. While that was running, they contacted the home health ppl. and had them call me. After my IV was done, about 30 minutes later, my home health care package (with my 2 IV doses, flushes, and such) arrived and my brother and I promptly took the box and all the crap I'd brought with me and accumulated throughout the day at the hospital, and got the hell out of there.

Now, here it is Thurs. evening. I finished my last dose of IV  SOlumedrol yesterday and the nurse pulled the IV. YES! And today I started my rejection treatment prednisone taper. (Starting at 60 mgs a day for 3 days - holy shit) So, my tummy has been hurting today but luckily that means that the Prednisone Monster hasn't attacked me yet and I'm not shoving food down my throat at 75 mph.....YET. I'm going to try and do better this time around. I promise. *fingers crossed* Other than that I'm actually feeling a little better..feel like I have a little more energy already and ready to stop napping so much.

I'm sitting at Lori's hanging out in her bed and typing away and relaxing, while she is cleaning her house. Technically I'm supposed to be keeping Keegan (her 4 year old) company and out of her way, but he's a firecracker. He's hard to control. :) But, he's done well so far. But now I'm alone and he's in there. He couldnt stay away from mommy and daddy for too long! Rob, her man is cooking up a big dinner and it smells fuckin' awesome.

I am going out to one of my favorite Japanese restaurants on Saturday for an early Valentine's Day dinner with Chris. Can't wait! Then we are driving back into town and staying the evening at Lori's house so he won't have to drive all the way back to Lincolnton. Sounds like a good Valentine's Day! Can't remember the last time I had a good Valentine's Day. I think it might have been the last one before I got sick. Which was actually the weekend I got sick in 93. Which ironically, my ex fiance Justin was my boyfriend. ANYWAYS -

I'm going to go I think dinner is almost ready. And then Wii later. I'll Hollllllllaaaaa!

I hate Winter.

Wassup?

Okay. what the hell. So I was scheduled to go down to chapel thrill today, right. To get repeat PFT's and such. Well, thanks to the fuckin' weather, I couldn't go. So I rescheduled my pft's for Monday morning. But, I couldn't get in touch with my coordinator to ask him if that was okay, or if there was anything he wanted me to do until then, etc. Great.  So. I still haven no idea if i have rejection or not. My chest is still tight. And I'm still coughing some stuff up. Great. Just great. Now i have to wait 3 more fuckin' days. It better not snow me out on Monday. I'll be there come hell or high water!

I had a great time with the girls on Wed. night. I took a few pics but I haven't downloaded them yet. I will probably put them on facebook for the world to see. Ha.Ha. Yay Don' Juans!

I'm supposed to go to Emily's birthday party tomorrow evening, granted the weather behaves and the roads are good enough to ride to winston on. Chris is supposed to go with me. Yay.

Okay I'm going to go try and email my coordinator. Have a wonderful weekend!!! Peace and chicken grease!

Update: Rejection or No Rejection - that's the question!

What's up y'all!

So, Ken (tx coordinator) called me back on Monday and said that I have Adenovirus. And that it could have caused a false positive rejection result. SO - Now, I don't know if I have rejection or not. Right now, the plan is for me to go back down to Chapel Thrill on Friday. Get repeat PFT's, and if my FEV1 hasn't gone back up, then they will go ahead and treat me with steroids. So, I guess we'll see what happens. I hope my pft's will go back up. Not only b/c it could mean no rejection, but b/c i worked so hard and waited so long for my FEV1 to hit 60%! and Now it's back down to 55%...so disappointing. I want it to go back up!!! Keep your fingers crossed for me please!

Tomorrow evening, Mary Berk, Julie, Brooke, Amanda and I all going out to Don Juan's to celebrate Mary Berk's birthday. Yay, Don Juans! We haven't been in a few weeks. I'd love to have a few drinks, but I'm not sure how smart that would be right now considering I have that virus and the bronchitis. So, I'll probably refrain. Or just have a beer. Since we are having tacos tonight for dinner, I'll probably just end up eating nachos and dip. Mmmm, liquid crack. My favorite. :)

So, it snowed all afternoon Friday into the night and over night and some Saturday too. We got 8 inches! That's the most we've gotten in a long time at any one time. Bo (my brother) and our friends Nate and Susie and their family all went sledding Friday and Saturday and Sunday. I wanted tog o so bad, but I figured it was best for me to stay in since I've got the bronchitis. :-(  But, it's amazing to see all this snow on the ground!!!

I've pulled a muscle in my back and it's hurting like crazy. So i've been using the heating pad all day and I eventually broke down and took some Percocet. It's helped a lot, but now I'm itching like a bitch!

Okay that's all I've got for you right now. I'll holla at cha later!!!

P.S.  I'm taking the quote thing off my page b/c it's not working right.

Fuckin' Shit, Man! Such is my life...

What's up y'all.

So, Thursday I went back to Chapel Thrill and had my repeat bronch to check to make sure there was no rejection. After the bronch, Dr. Nueringer told me that my upper airways were inflamed and that I had bronchitis. BOOO. Ken (my coordinator) called me yesterday afternoon and told me they had the biopsy results back. Bad news. Rejection. AGAIN! FUCK! This sucks. They said that it could have been stirred up by the cold/bronchitis that I have. But, this is just very disappointing and worrisome. This is the 3rd time post transplant I've had rejection. (Well the first time was only like 2-3 weeks post transplant while I was still incarcerated-but still) I hope this is not a repeating pattern.  It would suck so hardcore to have waited so many years to get new lungs and then end up getting chronic rejection. It's not been a good weekend. :-(  Ken is supposed to call me back on Monday and let me know what the plan for treatment is. I'll keep you posted.

P.S. I met a sweet, cute boy. Yay!

Thanks "Tiffany" the Masseuse for trying your best to cripple me!!!!!!

What's up bitchesssss?

It has been a while since I've written. Spiacente! ("I'm sorry." - in Italian) So let's see......updates.

Well, I'm single again, again. lol That's right boys....I'm available. Don't hurt yourselves beating a path to my door. :) No drug addicts, alcoholics or overly opinionated (who try to convert me to their way of thinking) or judgmental men need apply!

Let's see..what else...Christmas was awesome. Still going to P.T. 3 days a week. My 6 months Lungiversary (post transplant) was on Dec. 21st!! WOoo hoooo! Forgot to write a post about it. Mom took me out to eat and I put 6 candles on top of my chocolate cake thing at Applebees and blew them out!!! Yay i can blow out candles!!! :) Was supposed to have my post rejection bronch this past thursday but they cancelled it after I went all the way up there. (long story). I stayed the weekend though and went to clinic on Friday and spent the weekend with Vick and Chris and their kids. Always have fun with them! So thanks again Vicki for allowing me to spend time with your family!! Love you guys! Garran (their son)'s 1 year. lungiversary is next Tuesday. YAY!!!!!! Vick and I got massages on Sunday afternoon. I was so looking forward to it. But that bitch tried to cripple me!!! I could barely walk when she was done, my feet and legs hurt so bad!

Clinic went good on Friday. I'm fat still. lol  Effin' prednisone and rejection! My pft's were down 5% but I'm hoping it is just b/c I have been a little sick lately. At first it was just my sinuses for like a month (and still is). But now since Friday i've been coughing a lot too. I hate it! I thought I was going to make it through winter without getting sick!! i guess not! The Transplant Gods can be so cruel!!!!!!! *shakes fist annoyingly*

I bought myself Wii Fit Plus on Ebay. So now maybe that in conjuction with P.T. will help me lose some of this horrid weight I've gained. :) Keep your fingers crossed. I don't want to be embarrassed at the pool this summer. HEHE. Also, I am going to compete in the summer NKF transplant Games this summer in Madison, Wisconsin. (Barring any unforseen complications) So, Im going to start training soon. This time for real. lol  I can't wait to get back in the pool! I'm not sure what other sport I will do. We'll see I guess.

Since my bronch last week got cancelled, I have to get it done this Thursday. So, off to Chapel Thrill I will go again, tra-la-la-la-la POOP!

ANNOUNCEMENT: In order to be able to afford to attend the summer transplant games, I must raise money for expenses and such. If you love me enough to want to donate to my "Empty Pocket Transplant Games Fund" please do so! All donations are much appreciated!! :) If you want your donations to be tax-deductable you can donate online at http://donate.kidney.org/goto/meghann.murphy by clicking on the Transplant Games link on the right..OR- you can send me a check written out to the National Kidney Foundation. (they are the ones that put on the games every year) If you write it to NKF - PUT MY NAME (Margaret Murphy) IN THE "for" or "memo" section of the check so they will know it is for me. If you don't care about your donation being tax deductible, you can write the check to me personally. (Margaret Murphy) Whichever one floats your boats!!! :)

If you have any fundraising suggestions for me, or know of any companies, agencies, corporations, etc. who may be interested in donating as well, email me and let me know.  I can send you info for them. You can find my email on the blog. If not, just leave me a comment about it.

I'm off like my prom dress never went!!!!! :)


pic from Christmas Eve.